Defining Legacy: A study of Pediatric Patients, Parents, and Providers


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Legacy is more than a hand mold, yet current research has done little to define what a legacy can be, contain, and accomplish. Therefore, this presentation will detail the results of a qualitative study about the legacy perceptions of pediatric healthcare providers, hospitalized children, and their caregivers. By exploring how these groups understand legacy, child life professionals can inform, improve, and individualize legacy interventions.  SUGGESTED DOMAIN: Intervention

Objectives:
Participants will review the current research base concerning legacy theories and legacy building interventions.
Participants will consider the ways in which legacy concepts and theories function in a multidisciplinary pediatric hospital environment.
Participants will identify similarities and differences in conceptions of legacy across pediatric healthcare providers, pediatric patients, and their caregivers.
Participants will explore the implications of this research for legacy building interventions in child life practice.

Sophie Apple

CCLS

Sophie attended Vanderbilt for both her undergraduate and masters degree and recently received her M.Ed. In Applied Child Studies. She completed her internship at Tulane Lakeside Hospital in August 2018. Sophie has a passion for research in the field of child life and spent much of her time in school and beyond working on research in the area of legacy building interventions at the end life

Jessika Boles

PhD, CCLS

Vanderbilt University

Jessika Boles, PhD, CCLS is an Assistant Professor of Practice in the Department of Psychology and Human Development at Vanderbilt University, and a Certified Child Life Specialist at Monroe Carell Jr. Children's Hospital at Vanderbilt. She holds a Bachelor's degree in Religious Studies from Rhodes College, a Master's degree in Applied Child Studies from Vanderbilt University, and a Doctor of Philosophy degree in Educational Psychology with a graduate certificate in Qualitative Research from the University of Memphis. She has been a practicing child life specialist for fourteen years, the first 8 of which were spent in pediatric and adolescent oncology at St. Jude Children's Research Hospital, with the following years dedicated to the Pediatric Intensive Care Unit at Monroe Carell Jr. Children's Hospital at Vanderbilt. Dr. Boles is known for her research on the concept of legacy as it is perceived by various stakeholders and translated into clinical practices with children and families. Additionally, as the leader of the CHILL (Children's Healthcare, Illness, Legacy, and Loss) lab at Vanderbilt University, her research brings together multidisciplinary collaborators and student researchers to study the psychosocial needs and experiences of children and families in multiple contexts: pediatric critical care, medical complexity, developmental disabilities, adverse childhood experiences, and grief and bereavement. She has held multiple posts in the Association of Child Life Professionals, and currently serves as Lead Fellow for the Association of Child Life Professionals and as a voting member of the Institutional Review Board at Vanderbilt University and Medical Center. In her spare time, she enjoys punk rock, her family's home and menagerie of pets in Montana, and spending time with her children and husband.

Kristen Brady

CCLS

Kristen Brady is a Certified Child Life Specialist working in the Outpatient Clinics at Le Bonheur Children's Hospital in Memphis, TN. She received her Bachelor's of Science in Child Development from Vanderbilt University in 2016 and her Master's of Education in Child Studies from Vanderbilt University in 2018. Her research interests include legacy-building in hospital settings and young children's ability to learn social emotional skills through technology.

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Defining Legacy: A study of Pediatric Patients, Parents, and Providers Quiz
3 Questions  |  Unlimited attempts  |  2/3 points to pass
3 Questions  |  Unlimited attempts  |  2/3 points to pass
Defining Legacy: A study of Pediatric Patients, Parents, and Providers Certificate
1.50 PDU credits  |  Certificate available
1.50 PDU credits  |  Certificate available