Ethical Considerations when Advocating for Patients with Developmental and Behavioral Needs
An overview of the core ethical tenets that are relevant to the special needs population within the healthcare setting will be presented. Each tenet will be defined and explored in detail. A discussion of ethical issues surrounding the care of patients with developmental and behavioral needs will follow, incorporating the core ethical tenets. The role of child life as an advocate will be explored through the use of case studies. Participants will have the opportunity to actively engage and share ethical concerns they have faced in their clinical practice. Group discussion will provide the opportunity to critically evaluate difficult situations participants have encountered.
After this webinar, participants will have:
a familiarity with with the core ethical tenets relevant to the special needs population within the health care setting
awareness of the key ethical issues surrounding the care of patients with developmental and behavioral needs
knowledge of approaches for advocacy of ethically appropriate care
an understanding of child life’s role within ethical care
Anette Bonjour works as a Child Life Specialist II with the Adaptive Care Team and Behavior Safety Team at Cincinnati Children’s Hospital Medical Center. Annette collaborates with the interdisciplinary team when adapting health care encounters and creating support plans to meet the unique needs of patients with developmental and behavioral challenges. Her work includes performing psychosocial assessments and conducting in-depth pre-visit planning to coordinate care for patients exhibiting escalating and aggressive behaviors in the medical setting. In addition, she mentors fellow child life specialists, building their clinical skills to adapt health care encounters to meet the unique needs of this vulnerable patient population. Currently she serves as co-chair for the Evidence-Based Practice/Quality Improvement/Research Education and Awareness Sub-Committee for the Association of Child Life Professionals Research Committee and leads a number of evidence-based practice projects at Cincinnati Children’s. Annette is currently pursuing her Masters of Science in Health Sciences, focusing on Health Informatics. She has been working as a Certified Child Life Specialist for thirteen years.
Emily Jones works as a Child Life Specialist III with the Adaptive Care Team at Cincinnati Children’s Hospital Medical Center. Her work includes providing individualized education, preparation, procedural support, and therapeutic play to meet the psychosocial needs of patients with specific developmental and behavioral needs and their families in the health care setting. She collaborates with the interdisciplinary team to adapt health care encounters to meet the unique needs of patients with developmental and behavioral challenges. She is also part of Cincinnati Children’s Bioethics Committee, which provides help with resolving ethical issues following a bioethics consult requested by patient families, medical center staff, or community-based caregivers. Emily earned her master’s of science in psychology at Lipscomb University and her master’s of education in child studies from Vanderbilt University and has been working as a Certified Child Life Specialist for over four years.
Mary Faith Roell
Mary Faith Roell works as a Child Life Specialist III at Cincinnati Children’s Hospital Medical Center in the Division of Developmental and Behavioral Pediatrics and with the Adaptive Care Team Program. Her work includes supporting patients with behavioral and developmental diagnosis who have difficulty with health care encounters. She collaborates with families and caregivers to create a plan of care, provide support, and coordinate care within the interdisciplinary team. Mary Faith earned her master’s of science in family and child studies from Miami University and has been working as a Certified Child Life Specialist since 2002 and within the field since 1991.