Youth Self Management of Cystic Fibrosis: Parental Beliefs and Behaviors

Jessica is a doctoral candidate in the School of Education at University of California Irvine and is currently finishing her dissertation. Her dissertation work is a descriptive study on what parents of youth with cystic fibrosis are thinking about and doing in terms of preparing their children to manage their health as adults. She is also part of another research study, where she is interviewing parents of younger children with cystic fibrosis. This interview data will then be used by the other team members to create and validate a measure of stress and strength and resilience in parenting a youth with CF. Jessica is also a part time faculty member at California State University Fullerton where she teaches a range of courses in the Child and Adolescent Studies department and more specifically the child life theory and practice course. She maintains her child life certification and plans to continue to conduct research in the area of child life and/or youth with chronic illness.