Integrating Child Life Services in Clinical Research
This hospital developed a program for the first sponsored Cystic Fibrosis (CF) oral drug trial with 2-5 year old patients with an extensive research protocol. In response to the challenging protocol and young age group, the CF research team integrated child life services for study visits. This multi-disciplinary team developed materials to support learning and reduce anxiety for children. This relationship was integral to successfully enroll and retain subjects in a complicated trial.