Who's the Boss: Ethical Considerations When Caregivers Decline Preparation
Includes a Live Event on 03/30/2021 at 1:00 PM (EDT)
When caregivers decline preparation for healthcare events, child life specialists are tasked with balancing the primacy of patient and family centered care with our professional judgment rooted in evidence-based practice. We will discuss the inherent delicacy of this balance, including considerations for decision-making and specific strategies for ensuring caregivers are assisted in making safe and informed choices.
Participants will be able to:
-Verbalize current evidence of benefits and potential risks of developmentally appropriate preparation for healthcare events.
-Develop familiarity with ethical tenets related to preparation for healthcare events.
-Discuss considerations for decision-making and specific strategies to employ when a caregiver does refuse preparation for their child.
Suggested Domain: Ethics
Lauren Straub, BEd, CCLS, works in the outpatient setting in a medical clinic following patients with developmental and/or behavioral diagnoses.
Emily Jones works as a Child Life Specialist III with the Adaptive Care Team at Cincinnati Children’s Hospital Medical Center. Her work includes providing individualized education, preparation, procedural support, and therapeutic play to meet the psychosocial needs of patients with specific developmental and behavioral needs and their families in the health care setting. She collaborates with the interdisciplinary team to adapt health care encounters to meet the unique needs of patients with developmental and behavioral challenges. She is also part of Cincinnati Children’s Bioethics Committee, which provides help with resolving ethical issues following a bioethics consult requested by patient families, medical center staff, or community-based caregivers. Emily earned her master’s of science in psychology at Lipscomb University and her master’s of education in child studies from Vanderbilt University and has been working as a Certified Child Life Specialist for over four years.
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