Along for the Journey: Supporting Patients With Chronic Illness Through Life Transitions
Transition is defined as a passage from one stage to another (Merriam-Webster, 2018). Within pediatric health care the word transition is most often used when referring to the transition from pediatric to adult health care. While the transition to adult health care is a significant event for many patients with chronic illnesses, there are many other life transitions that are potentially stressful and offer opportunities for child life specialists to provide support. Some of these other transitions include the transition between medical teams, to foster care, palliative and/or hospice care, and end of life. Child life specialists, especially those who work with patients with chronic illnesses, are often in the position to provide support during these transitions. It is important for child life specialists to be aware of the various transitions that patients may be experiencing, as this is an opportunity to provide individualized care to promote positive adjustment.
After this webinar, participants will have:
an increased understanding of various transitions that patients may experience
knowledge of interventions to utilize as they support patients through various transitions
the ability to consider the impact of transitions on a patient’s coping within the health care setting
Nikki Orkoskey is a child life specialist at Cincinnati Children’s Hospital Medical Center in Ohio. She currently works with patients of all ages and their families on an inpatient pulmonary and endocrinology unit. Nikki’s expertise on this subject matter is based on 19 years of experience supporting patients with chronic illnesses, including cystic fibrosis and diabetes. She has supported multiple patients through various transitions including the transition to adult care, between medical teams, to palliative care, hospice, and end of life.
Nicole Tanghe has been working as a child life specialist at Cincinnati Children’s Hospital Medical Center in Ohio since 2010. She currently works with pediatric patients and their families within the lung transplant program. Her interest and experience with working with long-term patients developed in her previous assignments within the Josh Cares program and Heart Institute at Cincinnati Children’s. Nicole was a participant of the ACLP’s inaugural Leadership Academy class in 2015 and has served on the Volunteer Recognition and Engagement Subcommittee.