Along for the Journey: Supporting Patients With Chronic Illness Through Life Transitions
Transition is defined as a passage from one stage to another (Merriam-Webster, 2018). Within pediatric health care the word transition is most often used when referring to the transition from pediatric to adult health care. While the transition to adult health care is a significant event for many patients with chronic illnesses, there are many other life transitions that are potentially stressful and offer opportunities for child life specialists to provide support. Some of these other transitions include the transition between medical teams, to foster care, palliative and/or hospice care, and end of life. Child life specialists, especially those who work with patients with chronic illnesses, are often in the position to provide support during these transitions. It is important for child life specialists to be aware of the various transitions that patients may be experiencing, as this is an opportunity to provide individualized care to promote positive adjustment.
After this webinar, participants will have:
an increased understanding of various transitions that patients may experience
knowledge of interventions to utilize as they support patients through various transitions
the ability to consider the impact of transitions on a patient’s coping within the health care setting
Nikki Orkoskey, MA, CCLS, has been a child life specialist for over 20 years. She works with patients of all ages and their families on an inpatient pulmonary and endocrinology unit at Cincinnati Children's Hospital Medical Center (CCHMC). Nikki works with the CCHMC Transgender Clinic as a facilitator for a monthly support group for children and teenagers between the ages of 4 and 14 who identify as transgender and their siblings. Nikki also has experience providing inpatient child life services to patients who identify as LGBTQ+ and acts as a resource to staff related to providing care to patients who identify as LGBTQ+. Nikki volunteers with the Gay, Lesbian, Straight Education Network to plan educational activities for LGBTQ+ youth and their allies.
Nicole Tanghe MA, CCLS, has been a Certified Child Life Specialist for ten years and currently works as a Child Life Specialist III within the lung transplant program at Cincinnati Children’s Hospital Medical Center. She established child life services in the lung transplant program at CCHMC and is the child life representative on the medical center's interdisciplinary Transplant Information Program Sharing (iTIPS) committee. She serves as a mentor and preceptor to new employees within the Division of Child Life and Integrative Care, a clinical supervision facilitator, and is an evidence-based practice project mentor to child life interns. Nicole is the current chair-elect of the ACLP Mentor Program subcommittee. Nicole is an adjunct instructor at Northern Kentucky University for a children and families in healthcare course.